Thursday, March 27, 2014

The beginning of progress

We are now 3 days out of our heart surgery, 2 days from a follow up heart cath to the surgery, and yesterday we had an MRI. It has been a long, busy, and stressful week, but now all those things are behind us. 

First off, I would like to thank everyone for the encouraging words and thoughts after by previous blog post. It all really meant a lot to me. One of the things I have found so amazing during this is how  many people that come out and share with you the struggles their family or their kids have had. It makes you feel not so alone in this scary world of hospital walls and medical lingo. 

On a happier note, we are on the road to recovery from this first round of procedures and surgery. Today they are working on weaning off the vent, and they just started breast milk again through his feeding tube in his noise. Yay! Both of those are great positives and much appreciated after the last couple weeks. Please continue to pray for good progress! 

We also get to go back to a private room today instead of the post- op surgical bay we have been in. So if you are one of the people that like to send cards through the Nationwide Children's website I will let you know later today what our new room number will be. 

Thanks again for all the thoughts and prayers. Knox greatly appreciates them! He says he loves all of you! 

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